27 July 2009

Oh, hi there.

so knock on wood, kids, the end is near.


A few weeks ago I went to the surgeon to get an update on my eye's condition. Rather than the customary flashing of lights in my eye and mumbling that I'd have to come back in another few months, I finally got some (somewhat) concrete answers. I am going to have a final surgery to remove the oil bubble that's in the eye, and an implant will be...implanted.


Thank God for Elaine, I wouldn't have remembered a damn thing about the visit if it weren't for her. I have some issues with hospitals, likely due to my experience with them at a young age. I get nervous, punctuated by minor panic attacks and mood swings. I can make jokes about how many packs of smokes the Gollum-voiced woman three seats down inhales on an average day, then the next minute I'll be brooding and snapping at the people who brought me there in the first place. I don't really think before I speak and I regret a lot of the things I say once it's too late to stop. In the doctor's office I make jokes, humour being my de facto defence mechanism. The doctors must get people like me all day. They're there to fix my eye, not to fuck around and have a laugh with some nervous kid. On top of all that, I either don't listen or I just hear what I want to hear. I personally come away from the visits with either a complete misunderstanding of what was said, or I latch on to the one thing that slipped through my internal wall of white noise and brood. Afterwards, I'm usually irrationally angry or I'll be super-psyched about the one scrap of good news that I've skewed into a impossibly positive sign of things to come, only to be let down later. This is why I'm lucky to have Elaine. She sets my ass straight, condenses the news into a digestible Coles Notes version for my under-developed brain to understand, and somehow manages to take my icy verbal jabs in stride. She knows I don't mean the poison that I issue forth, but I find out when I've crossed a line. I generally will spend the rest of the day kissing up to make good, which, I theorize, isa cunning plan on her part. She puts up with a lot of silly shit and I'm aware of how lucky I am for that.


As far as the eye thing goes, I may not even need glasses or contacts when it's all said and done. It's an odd feeling. I've never seen myself (in real-time) without glasses. I've seen pictures, but that's not the same as looking in a mirror and thinking 'don't I know you? You look familiar...' I've always worn glasses, and I think they've become sort of a safety blanket for me. They hide my oddly-shaped left eye and somehow that makes me feel safe. Sure, I have got the "Wow, your lenses are thick, what do you see out of those?" questions. Generally I'll be civil about the boorish comment. What the hell do you think I see out of them? I fantasize about ripping into people, though, with "Wow, your teeth are mossy and sparse, how do you eat with those?" People wearing bifocals do not have any idea what I'm talking about. Sure, they get the "four-eyes" and "Poindexter" banal bullshit, but it means nothing. There are assholes out there, who, thinking they're making an innocent query, ask extremely personal information. In such a blasé fashion you'd expect someone to ask another "what's up with the weather?" I've gotten "what the fuck is up with your glasses/eyes?" My favourite question is still "What can you see with those?" Do I look like Cyclops or Geordi La Forge? You can see my eyes through the clear glass lenses, right? Then clearly I must see a world of black and green, binary digits flying like neon snow. I see the world that is pulled over the eyes of others, and I am looking for recruits to wake up from their programmed existence to help me defeat our horrible robotic masters. That's right, fuckers, we live in the Matrix and I am your messiah.


God, I'm going to miss glasses.


Another thing I want to touch upon is the debate about US health care reform. I make no claims to know much about the politics behind it, and I don't honestly give a shit about that. I believe that, regardless of one's financial situation, everyone deserves free treatment. Simple as that. I also feel that if the US makes health care accessible to everyone, the doctors trained here in Canada will be more resistant to move South.

I know people who bitch and moan about the wait times at hospitals in Canada. These people aren't taking all patients into account. When I was first admitted to Toronto Western, not knowing I'd have to have surgery, I was thinking about that very issue. How can they make people wait so long for a procedure? I pondered the ethics of delaying surgery, thought about waiting rooms filled with pacing family members and nervous friends. I thought it was awful.

Then I was told I needed immediate surgery. My doctor scrubbed up, I was ushered into the frigid change room and donned a lovely gown featuring a delightful floral design. I walked past other patients, who I found out that, because of my surgery, they've been bumped from the schedule. 'What made me more special or deserving?', I thought. I felt their glares boring into my back, not needing vision to know a lot of people were pissed at me. Did I just condemn these people to a long, agonizing death? I asked Elaine and the nurse taking my blood pressure and administering eye drops about the people I gave the shaft to. "Oh, you no worry 'bout them," said the nurse, a thick Latin accent tangoing with her words, "they only have sore toes, hang-a-nails, you know? You much more severe, they wait a bit longer." I protested that I felt bad, saying that I could wait just the same. "No, you can't," Elaine told me as she squeezed my hand, "the doctor said it can't wait and you need to be in right now. The other people have broken bones, minor things that can wait." Not an hour after the doctor muttered, to no one in particular, "yeah, it's a detachment," I was shuffling down the freezing hallway to the OR. This is when I realized that though wait times are prevalent in Canadian hospitals, admittance is based on urgency. We don't have people coughing up blood, keeling over, and expiring in a full waiting room as nurses blithely sip their double-double and glue their eyes on CP24. I guarantee the people complaining about wait times are either yuppie do-gooders who haven't been in an ER for so much has the snuffles, or they're people with a non-serious issue (meaning not requiring immediate attention, broken bones, minor burns, etc.), who don't believe that they, God forbid, should be waiting for treatment with the plebs. I agree with a hospital gauging seriousness by "might die/might have lifelong repercussions" and "trivial shit." It's that cut-and-dry.

In one waiting room there was a guy who was, what I can only try to convey, frantically throwing up into the waiting room's garbage can. Every hurk and heave, followed by a splash of expelled fluids made the whole roil and shift uneasily. I eavesdropped that the poor guy had been violently ill like this a few weeks before, and had just recovered a bit. His doctor warned him not to go back to work until he was better, but rent loomed. He returned to his job, which I gathered was temporary construction work,, and the long, hard shifts brought his sickness back in full force. As unsettling as the scene was, he still had to wait to be seen by the doctor on call. I felt for the guy, who was sobbing softly between upchucks, praying for a moment's respite. No dice, another "Urp!" and another splash, amplified by the steel, hollow trash can. Doctors see a guy with a stomach bug. "Any blood?" they'd ask. "N...no, no blood, only...", his voice trailing as he whips around just in time to make another deposit. He'll have to wait, then.


Blood or a life-altering issue are what doctors are concerned with. I'm not saying that the guy who puked for the better part of four hours had it easy, and I don't envy people with broken bones or loosened teeth. I do have a problem when people complain that wait times are too long. Get a serious injury, get priority treatment. Doctors don't give a shit that you're going to miss dinner, your kid's tee-ball game, or a few hours of work.


If we lived in the States right now, I'd be blind. Simple as that. I couldn't afford the amounts that they charge for surgery. If I had the surgery there, I would have crippled our future, and compromised the financial states of my family. I couldn't do that, so I simply would have accepted it and stocked up on audiobooks. I feel for the people who ruin their lives by having it saved, if that makes sense. I don't mind waiting two or three months for my surgery. I'm at a safe point right now, and after eight months, what's a few more? I fully expect to be delayed in the waiting room for gunshot victims, people with severed digits, and other serious problems. My case was urgent in December, and now I have the luxury of waiting for the finale.

I'm not psyched for having surgery, but I'm willing to wait if it means I come out of it wit a few bucks still in my pocket.


I hope in that rant people can glean my point from it.


On a lighter note, I've been thinking about what I'll be doing when I can finally see. My plans are as follows:

-read almost an entire year of National Geographic, Penny Arcade comics, and the Time and People magazines I picked up commemorating Obama's inauguration.

-play the following:

-Prince of Persia (still sealed)

-finish Force Unleashed (turns out I didn't...)

-beat Elaine at Rock Band

-school people in Trivial Pursuit

-replay Ocarina of Time and Twilight Princess

-ODST!

-pry Professor Layton out of Elaine's DS...

-Oh, and buy a DSi.

-I want to cook, but I'm currently afraid of knives (nothing's scarier than not knowing if you've cut yourself).

-an extension of the last one, I might take cooking classes

-learn what the hell is so good about Twitter

-get an iPhone (*swoon*)


It goes on. Honestly my first day back in the visual spectrum, I'm going to stare at Elaine for a long time, then I'm going for an extended drive alone, with my iPod on shuffle and no particular destination. Maybe I'll read Calvin and Hobbes and have a beer.


All done!

19 May 2009

Living vicariously through a robot's voice

(note: there's some stuff in here about eye surgery. It's not terribly gross, but I've met some people who can't handle they idea, so there's your disclaimer. I'm sure there are typos in here as well, robot voice is not infallible.)


Hi there. 


I've finally figured out the screen reader software that's built into the Mac, so I'm again able to be unproductive as ever with the help of the internet. Now that I'm able to use the computer though, I have no idea what to look up. I guess it's the Random button on Wikipedia for me.


I've been busy in the last six or so months since I las put something up here. In the last post I wrote I was mentioning that I was having some vision problems. Well, it turns out I was right. We went to Emergency at Toronto Western to get a look at the eye and after a few checks and double-checks it was confirmed that I had a retinal detatchment. Seeing as this is what caused the loss of vision in my left eye, this isn't exactly what I wanted to hear. Everything was happening so quickly that before I realized it I was in the operating room. (I checked the OR, I did not like it so far). I had an IV full of God knows what, they put the gas mask on me, and I was gone. 


I barely remember the next two days. I was so messed up on the general anesthetic and having a grand time.I recall some of the people in my recovery room: one guy was speaking in tongues and coughing up whatever may constitute as his lungs; another was there for what we figured was a broken toe or fractured ankle and was splitting his time between hitting on the nurses and complaining on his phone all night to his mother. He had to have been damn near 40. I think this was the occasion where I quoted a particularly offensive Monty Python skit - "Ginger? Are you a poof? :I should thay not!" - so I'm sorry to anyone whose sensibilities I insulted, poof or otherwise. 


Oh, I'm also irrationally afraid of needles, so it wasn't really the best of times. I was complaing about feeling like I was going to throw up. The nurse explained that it was likely due to the anesthetic, and asked if I wanted some Gravol. I replied "Sure, so long as it's not a suppository." They said it wasn't. They came back with a syringe and upon seeing this I claimed I was fine and not ill in any fashion. They didn't believe me. Christ, I had a welt on my arm from that needle for weeks. 


About a week after the first surgery I was back in the hospital for a check up. The first surgery had done well, but they found another tear in the bottom of my eye. I'm sure that as I write this the back of my eye looks like a quilt. The hardest part of this result was that I had a few days to panic a boutit. With the first operation I had no time to dwell on the fact that I was about to go under the knife, but this time I had a good few days to ponder the outcome. I wasn't exactly pleasant to be around, I'd wager.


The second procedure went well and six months later everything is where it should be. I'm seeing the surgeon again July to hopefully get my third and presumably final operation done. The tears are closed and are healing nicely. The surgery would be to do some "spring cleaning." There's a cataract that's grown to protect the eye, some scar tissue to get rid of, and maybe just to tidy and reupholster the thing. 

Oh, when I had the second procedure, they put an oil bubble in my eye. It's there to put some pressure on the retina, and it kind of feels like I live in a snow globe, or a carpenter's level. The result? Fantastic balance. (not really). There's a constant curve on the top of my field of vision, like the brim of a ball cap. Since it is a kind of oil, I asked one of my surgeons what kind it was. Canola? Olive? 10W-30? He didn't even crack a smile. I then asked him if I had to change it every 3000 miles. Didn't laugh. That's comedy gold, Jerry! Opthamalogists are the Germans of the medical world: strict, efficient and humourless. Maybe it's because I have brown eyes and not blue? Oh well.


I spent the first few months getting eye drops and wearing a patch. You wouldn't believe the cocktail of drops they had me on. At one point there were three different kinds: one general dialator; an awful cold goop that I had to put in, shut my eye, and for lack of a better term, swirl; and one which I can't remeber what it did, but I needed it every two hours for two weeks. If anyone needs to get someone to do drops for them, talk to Elaine, she's get the method on lockdown. 


I'm not taking drops anymore and I'm slowly regaining my independance. I was totally dependent on Elaine for a while, but aside from my fear of knives and the oven (both of which I don't trust myself with when I can see) I'm able to cook for myself. I have a white identification cane that I tap around with and it gives me some mobility. I am nervous crossing the main intersection near my place though. There's no audio signal, there are advance signals, and throw in the general ineptitude of drivers and you don't have to be visually impaired to fear it. Both Elaine and I have been tagged by cars not paying attention there. My method is to lurk at the convenience store or McDonald's until I see a group of people going to the corner and I blend in with them. I figure if someone gets hit, I'll have a bit more warning this way. 


My biggest challenge has been finding something to do. Our apartment is fairly small and suddenly I can't do what I'd normally do to kill time. All boredom and no video games make Dan something something.  Well, that's a lie. I can play Rock Band, which doesn't sound like a huge accomplishment, but the bright primary colours are perfect for the level of sight that I have. Also I can sing, provided I know the song. It's a bit of a fiasco if I don't, I just make up the lyrics and someone inevitably gets offended. Dayna is made of feelings, wwwwwaaaaaahh. I did also recently beat Super Mario World for SNES, so my self-perscribed rehab is working as far as I can tell. I've also burned through a huge pile of audiobooks thanks to the St. Catharines Public Library. I actually have a new favourite author, Sir Arthur Conan Doyle. Had I not lost the vision I wouldn't have been introduced to Sherlock Holmes. So, I'm happy for that.


I realize that I'm simply rambling at this point, so I'll wrap this up. I'd just like to tell everyone I haven't been able to talk to in the last while that I've been a bit predisposed of late. I'll hopefully be back on the horse in a few months. I'd also like to thank everyone who have helped us out in the last while. Everyone's been so giving and helpful and we both truly appreciate it.


I'm sure I'll find something else to talk about soon. I get bored, you see.


Take care

Living vicariously through a robot's voice